Janek again had DBS surgery on the 26th of february. About one year before, all devices had to be removed again after severe infection. Now we hope that there is no infection this time. There is some liquid above the stimulator, but no signs for infection so far. Janek got a rechargable stimulator from Boston Scientific, which is very small. He has 2 electrodes (gpi) instead of 4 because of his small size.
My question to the other parents which experiences with DBS: how long did it take until you recognized some changes with respect to self injury behavior? Janeks stimulator is on for about 10 days now, with a setting of 2.8 mA. We do not see any significant changes yet but its probably very early.
Katja with Janek (9)
Thanks for letting us all know how you and Janek are doing. I'd been wondering. I hope you'll be seeing some improvements soon.
Allison, Grayson's mom