The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
LND Net member Anne Powell has written a memoir of her experiences growing up with her brother, Bob who had Lesch-Nyhan. It is available at Amazon.com. Dr. William Nyhan wrote the Forward and portions of the book were published in the December 2013 Journal of Genetic Counseling.
Hello. Lukas (2 yrs.) has periods when he does not sleep almost whole night, keeps crying or at least mewling all the time. However he mostly does not look like being in any acute pain. During the…Continue
Dear Community,We have a 23 old son, Daniel with LND. He is one of the most severe examples of LND, we believe. In the last couple of weeks, he has become more and more hypotone. He has so much,…Continue
my son,joshua is 6 years old. he started biting his hands since 2 and also he's been biting his cheek inside of his mouth since 4. we've been using arm brace and mouth guard. recently he's biting…Continue