The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
LND Net member Anne Powell has written a memoir of her experiences growing up with her brother, Bob who had Lesch-Nyhan. It is available at Amazon.com. Dr. William Nyhan wrote the Forward and portions of the book were published in the December 2013 Journal of Genetic Counseling.
I've been doing alot of research, since viewing Tristan's story about 2 months ago on Mystery diagnoses. I came across it while watching some other episodes on youtube and such, but This case "The…Continue
Hey guys! My name is Anna and I'm a 17 year old high school senior. For graduation, I have to do a community service/volunteer work based project. For the last 2 years I have been working with a 5th…Continue
Hi I am currently working with a 12 year old young man who is due to have a kidney transplant. I just wondered whether anyone has had or knows someone who has LND and has had a kidney transplant .Continue