The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
LND Net member Anne Powell has written a memoir of her experiences growing up with her brother, Bob who had Lesch-Nyhan. It is available at Amazon.com. Dr. William Nyhan wrote the Forward and portions of the book were published in the December 2013 Journal of Genetic Counseling.
Hi I am currently working with a 12 year old young man who is due to have a kidney transplant. I just wondered whether anyone has had or knows someone who has LND and has had a kidney transplant .Continue
Hi , my name is Tara , my son Riley is 17 . We saw a new doctor today ,he hinted that Riley is at the age of regression.I would like to know if this really happens .Our genetisis also sad around…Continue