The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
LND Net member Anne Powell has written a memoir of her experiences growing up with her brother, Bob who had Lesch-Nyhan. It is available at Amazon.com. Dr. William Nyhan wrote the Forward and portions of the book were published in the December 2013 Journal of Genetic Counseling.
I have spent most of my day on this computer sending emails and trying to prepare for our upcoming Conference in May. We are beginning to expand our Foundation and I am happy to announce two new…Continue
Hello. Lukas (2 yrs.) has periods when he does not sleep almost whole night, keeps crying or at least mewling all the time. However he mostly does not look like being in any acute pain. During the…Continue