The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
Wicklund replied to Wicklund's discussion Clonezapam dosage?
Wicklund replied to Peter Subert's discussion Dentist in the W.D.C. metro area?
Wicklund replied to Wicklund's discussion Wheelchair seating
Kenny Ooi replied to Ruch's discussion scoliosis and back braces
Dexter replied to Wicklund's discussion Wheelchair seating
Dexter replied to Wicklund's discussion Clonezapam dosage?
Peter Subert replied to Peter Subert's discussion Dentist in the W.D.C. metro area?
Wicklund replied to Peter Subert's discussion Dentist in the W.D.C. metro area?
Wicklund replied to Wicklund's discussion Wheelchair seatingIf Clonezapam works for your son, at what dose is he taking? We just started in March and do not see much happening. It is now at 1ml two times a day. We were hoping it would help, coupled with…Continue
Started by Wicklund in Caregiver Exchange. Last reply by Wicklund 15 hours ago.
Dear Community Parents, We have recently transferred to the U.S. from Hungary and we have a 21-year old son, Daniel. His LND status is one of the most severe ones. He has the typical teeth problems…Continue
Tags: Dentist
Started by Peter Subert in Caregiver Exchange. Last reply by Wicklund 15 hours ago.
I am having a lot of trouble keeping Davey sitting upright in his seat without sliding down. The medical rep who supplied the chair said he will not sit properly unless his feet are strapped…Continue
Started by Wicklund in Caregiver Exchange. Last reply by Wicklund 15 hours ago.
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