The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
LND Net member Anne Powell has written a memoir of her experiences growing up with her brother, Bob who had Lesch-Nyhan. It is available at Amazon.com. Dr. William Nyhan wrote the Forward and portions of the book were published in the December 2013 Journal of Genetic Counseling.
Hi , my name is Tara , my son Riley is 17 . We saw a new doctor today ,he hinted that Riley is at the age of regression.I would like to know if this really happens .Our genetisis also sad around…Continue
We would like any feedback from parents, friends, and/or associates who have had or know of anyone who has had this surgery. My daughter, Rasheedah, and I, are desperately in search of people who…Continue
Hello Everyone, Just an update on the DBS surgery for Amyas. The surgery was carried out on the 26th and when the surgeon made the opening to remove the old stimulator, he found that the connecting…Continue