The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
LND Net member Anne Powell has written a memoir of her experiences growing up with her brother, Bob who had Lesch-Nyhan. It is available at Amazon.com. Dr. William Nyhan wrote the Forward and portions of the book were published in the December 2013 Journal of Genetic Counseling.
I am desperately sorry to hear about LND Net closing. It has been the best and greatestfriend of our family during the latest years. It really became a "sunray" for us and Ican't imagine our life…Continue