LND Net - Lesch-Nyhan Disease support group

Lesch-Nyhan Disease support group

This is a network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.

Latest Activity

anne powell I am writing a memoir about my brother who had LNS.

10 hours ago

anne powell updated their profile

10 hours ago

anne powell and Radamés Ádamo Zuquello joined LND Net

10 hours ago

Brianna Pharr and Andrea Holker are now friends

15 hours ago

Ruch and Brianna Pharr are now friends

on Friday

Ruch left a comment for Brianna Pharr

on Thursday

Brianna Pharr added a discussion

Please respond

Hi! My name is Brianna Pharr and I'm a student at North Carolina State University. I am doing a research paper on Lesch Nyhan for my genetics class and I would really like to gain more knowlege about what one goes through caring for a child with L...

October 31

Brianna Pharr is now a member of LND Net

Welcome Them!

October 31

Tiffany We found out it was fractured! Praise God it healed on its own. I have my baby back:)

October 30

Theresa Holder is now a member of LND Net

Welcome Them!

October 28

Ilona left a comment for mamie brown

October 26

Andrea Holker replied to Andrea Holker's discussion 'Xanthine Stones'

MY dad has been passing stones the size of apple seeds.. his nephrologist analizied them and the are xanthine stones. They just decreased his allopurinal dosage form 300mg to 150 mg. he has been @ the 300 dosage for many many years.

October 26

Dexter replied to Andrea Holker's discussion 'Xanthine Stones'

I can only tell you how to prevent them. Have not had to deal with getting rid of them as we have been very careful with Amyas.. So if thats what you want then:- 1. Maintain blood uric acid levels between 4.5 -5.5 2. Potassium citrate liquid - 5 ...

October 26

roger commented on Lowell T. Anderson's photo 'AdamInCar2'

who makes them knee blocks in this pic ? if you know ,i think i could use them on my chair

October 26

roger is now a member of LND Net

Welcome Them!

October 26

PAT RANDOLPH left a comment for mamie brown

October 25

Welcome to LND Net!

LND Registry is now LND Net.

Forum

Please respond

Started by Brianna Pharr in Announcements Oct 31.

Xanthine Stones 2 Replies

Does anyone know what is involved in getting rid of xainthine stones?

Started by Andrea Holker in Caregiver Exchange. Last reply by Andrea Holker Oct 26.

CHAT

Hello i wonder if anyone can tell me about CHAT and how it works.whilst i've been online i have noticed on occasion other members have also been on and i've gone to the chatroom and see names but i...

Started by mamie brown in Announcements Oct 19.