The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
If Clonezapam works for your son, at what dose is he taking? We just started in March and do not see much happening. It is now at 1ml two times a day. We were hoping it would help, coupled with…Continue
Dear Community Parents, We have recently transferred to the U.S. from Hungary and we have a 21-year old son, Daniel. His LND status is one of the most severe ones. He has the typical teeth problems…Continue
I am having a lot of trouble keeping Davey sitting upright in his seat without sliding down. The medical rep who supplied the chair said he will not sit properly unless his feet are strapped…Continue